Lyme Disease Association of Australia

Resources


Newsletter

The LDAA issues a regular newsletter which provides an update on all things Lyme related in Australia and sometimes overseas. Not yet a subscriber? Become one now.

Alternatively, an archive of our Newsletters is available below in PDF:

Current Newsletter:

Previous Newsletters:

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Patient Resources

The following is a list of patient resources you may find useful.

Ask the Doctor SeriesDealing with a HerxPhysician InterviewsConference Notes
Support Groups

There are a variety of support groups available for both Lyme patients and their carers. A mixture of offline and online support is available.

Facebook GroupsFace-to-Face GroupsRelated Groups

LDAA Support Groups (Connect on Facebook)

  • Sydney - Offers Southern Sydney (Miranda) and Northern Sydney (Pymble) group meets.  Contact Gabrielle for Southern Sydney and Lisa for Northern Sydney.
  • Perth (Shenton Park) - Chrysalis - Offers a young persons (10-30 years of age) and adult groups. Both groups meet every 3rd Saturday of the month at Grace Vaughan House 227 Stubbs Tce, Shenton Park. Contact Alisa Burgess on email or phone 0450 414 682.

Other Support Groups

NSW

QLD

  • Mid North Coast Lyme Awareness and Support Group - Contact the group organizer.

  • Fraser Coast CFS/FM/ME/Lyme Support Group - First Monday of each month, from 9.30 to 11.30 am, Maryborough Community Health Centre, 167 Neptune Street, Maryborough (Conference room - inside front door and turn left, no perfume or anything with odours) - Contact the group organiser.

NT

  • NT Lyme & CFS Support - meet every first Saturday of the month at 11 am at Cafe Karma, Parap. Contact us/confirm meetings 0459 039 121.

VIC

Websites, Books, Documentaries, Blogs and Reports

The following list is a small selection of useful websites, books, documentaries, blogs and reports that provide an overview of Lyme disease, research activities and general management of the disease.

WebsitesBooksDocumentariesBlogsReports
  • The Californian Lyme Disease Association website has lots of good information about Lyme Disease, as well as the latest news in the Lyme Disease Community. It is worth joining CALDA for their excellent magazine, Lyme Times.
  • The Canadian Lyme Disease Foundation website has good information about Lyme disease.
  • Dr Nicola McFadzean-Ducharme (who is a member of the Association) has information about Lyme Disease on her practice website to assist medical practitioners and naturopaths.  Dr McFadzean-Ducharme recently gave a talk in Sydney on Lyme Disease in Australia - her presentation slides are available online with information about diagnosis and treatment options.
  • Lyme Australia Recognition and Awareness - this is a great website with the most up to date and most comprehensive listing of research into Lyme Disease in Australia, including the ticks in Australia that can spread Lyme Disease and the birds that spread these ticks to and around Australia.
  • Worldwide Lyme Borreliosis Association - this is another fantastic association that has been established to promote and raise awareness of tick-borne diseases worldwide with an aim of ensuring those suffering are able to access information and advice relating to tick-borne diseases.
  • Living with Lyme Disease - this website has great tips and advice about living with Lyme Disease.  There is a section on being a teenager with Lyme Disease which has great advice for teenagers - but the advice is also very relevant for people of all ages coping with having Lyme Disease in their life.
  • Toxic Mould Support Australia - Provides a wealth of information on Chronic Inflammatory Response Syndrome (CIRS) which is often seen in Lyme patients.

The following list is a small selection of useful books on Lyme disease including complementary therapies:

The following is a list is a small selection of documentaries on Lyme disease:

We understand that purchasing documentaries may be financially impossible for some Lyme disease patients, so if you are happy to wait, we do offer a small number of copies that can be rented free of charge. There is often a long wait list and we do ask that renters watch and return the documentaries as soon as possible. Copies can be rented by contact us and selecting "I'd like to borrow a DVD for personal use." Please remember that this service is for Australian residents only.

June 4th, 2016 – Neeva Stephen – To Tell or Not To Tell, That is the Problem

September 14th, 2016 – Karla Williams – When Pain Turns to Fury

The Australian Association of Bush Regenerators recently released a guide to Ticks and Tick-Borne diseases in Australia.

Please note that as indicated in this report, there is currently scientific debate on best practise tick removal.  At this time the LDAA does not advocate attempting to kill the tick in any fashion prior to removing (with the exception of mass nymph attachments).

Flyers, Posters, Presentations and Merchandise

The following flyers, posters, presentation and merchandise are are available for download, printing and purchase for your information or to utilise at your next awareness event:

FlyersPostersPresentationsMerchandise

If you require a large amount of flyers for an awareness event please contact us.

  • Currently being updated, please inquire via contact-us
  • Purchase a selection of t-shirts and other items from the LDAA's store where a percentage of profit from goods are donated to the LDAA;
  • Tick removal tools - pronged devices are best as they fit under the head, close to the skin and can remove a tick with a 'twisting' motion. Two recommendations:

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