Lyme Disease Association of Australia

Lyme Disease in Australia

Community Affairs Final Report on Lyme-like Illness Inquiry has been published!

There have been 12 recommendations around testing and patient support tabled for the Inquiry into Growing evidence of an emerging tick-borne disease that causes a Lyme-like illness.

You can find them on Page 10, or read the report in full. Or watch the YouTube clip below of proceedings:


LDAA Senate Inquiry Supplementary Submission has been published!

Img1The Lyme Disease Association of Australia's supplementary submission (#528ss2) to the Senate Inquiry into Lyme-like illness in Australia has been published.

We hope all of our work as a community will inspire strong, patient-focused recommendations in the Final Report due November 30th.

You can view our submission in full here.

 


LYME FLASHBACK: Lyme disease in Australia in 1992!

Watch this special report from ABC's 7:30 report on Michelle Wills research about Lyme disease from 1992:

"We knew we had a break through as recently as about a week ago [1992] when we discovered that the microbe that we have been characterising is actually structurally very similar if not identical to the 'classical Lyme' disease [Borrelia burgdorferi] causing agent."


FINAL SENATE HEARING: Couldn't make it to Sydney? Listen now!

The last Senate Hearing into Lyme-like Illness in Australia took place in Sydney on 2 November 2016. We thank both those that attended and those that made appearances before the committee. We know it took time, strength and courage. And for many of you was a bitter sweet feeling of having the opportunity to share your story.

For those of you who could not attend we've uploaded an audio copy of the hearing. It is in 3 parts below. Alternatively, you can read the hansard here.


CAMPAIGN LAUNCH: The Federal Election 2016 and Give $10 for Lyme in May

MLP2016_WebWe are very excited to launch our The May Lyme Project for 2016. This year we launch a dual campaign; The Federal Election 2016 and Give $10 for Lyme in May!

The Give $10 for Lyme in May campaign aims to raise as much money as possible to assist with the LDAA's advocacy work. We encourage you to ask your friends, family and local community to help support those with Lyme-like illness by donating $10 for Lyme throughout the month of May. Every little bit counts, but remember give only what you can!

Equally, the Senate inquiry into Lyme-like illness has raised the profile of our plight. We have been delighted to see politicians from major and minor parties, and independents come together in awareness that something must be done to help patients. The Federal Election 2016 campaign aims to build on this. We've developed a range of tools to assist you in contacting your local Federal MPs and future candidates.

You can check out all the details here. This year we've produced a step-by-step guide on how to contact your local Federal MP and candidates and how to Give $10 for Lyme in May. We also have a variety of Give $10 for Lyme in May marketing material!


Couldn't make it to the hearings? Listen now!

We are very aware that many of our community couldn't attend the public hearings held in Perth, Brisbane and Canberra recently.

To help those who missed the hearings, or those who would like to relive some of the testimonies, you can listen live below. Each hearing, except for Canberra, is in two parts. You can also watch the Canberra hearing on video.

If you prefer to read, Hansard is available for Perth, Brisbane and Canberra.

Thank you to everyone who attended and gave evidence, particularly the Lyme and Lyme-like patients!

Want to see who gave evidence so you can skip ahead? Access the Brisbane, Perth and Canberra programs here.


LDAA Senate Inquiry Submission has been published!

Img1The Lyme Disease Association of Australia's submission (#528) to the Senate Inquiry into Lyme-like illness in Australia has been published.

We hope this submission will go to some way in changing the way in which Lyme and Lyme-like illness patients in Australia are treated.

You can view our submission in full here.

Thank you to everyone else that has submitted to the Senate Inquiry. Well done!

 


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