Lyme Disease Association of Australia

Lyme Disease in Australia

Make a submission to the senate inquiry now!

Securing a senate inquiry into Lyme-like illness in Australia was a great achievement. Now, the real work begins. Patients, carers, children and any other individual, group or organisation that are familiar with Lyme-like/Lyme disease and its impact are encouraged to make a submission to the inquiry.

To assist in this process the Lyme Disease Association of Australia have prepared a patient resource. The resource provides information on the senate inquiry, how to make a submission and  includes a guide on what to include in a submission. There is even a submission template for children!

Easy Guide to Submissions: The resource can be accessed here, and for those of you who are stuck, or need assistance remember to contact us!

Remember:   Our aim is to have as many people as possible tell their stories early to demonstrate the need for additional public hearings. The Senate Inquiry remains open for submissions until March 31st, 2016, for those of you unable to support us in submitting early.

Madigan successfully secures motion for Lyme-like senate enquiry

Senator John Madigan has continued his efforts to have Lyme and Lyme-like disease recognised in Australia. Senator Madigan, with the support of Senators Wang, Leyonhjelm, Day, Lazarus, Lambie, Xenophon and McKenzie successfully secured a motion to establish a senate enquiry into the debilitating illness.

The Lyme Disease Association of Australia extends our gratitude and thanks to Senator Madigan and the other co-sponsoring senators for their efforts in helping an increasing class of Australians struck down with Lyme and Lyme-like disease.

You can read Senator Madigan’s media release, the LDAA media release,  view details on how to make a submission or view the historic moment below!

Lyme Disease raised in Senate Estimates

The Lyme Disease Association of Australia wishes to thank Senator John Madigan for representing Lyme and Lyme-like disease patients in Australia. Senator Madigan posed a number of questions to the Department of Health and officers responsible for regulatory affairs during the Community Affairs senate estimates hearing in Canberra on 21 October 2015.

You can view the discussion in full below. A copy of the hansard will be forthcoming.

Lyme Disease Round-table held in Sydney

The Lyme Disease Association of Australia (LDAA) attended the House of Representatives Health Committee roundtable in Sydney on Friday 18 August 2015.

The roundtable provided an opportunity for the LDAA along with various other representatives and community members to provide insight into the Lyme/Lyme-like disease situation in Australia.

Thank you to Dr Richard Schloeffel for attending on behalf of treating physicians and to our own Sharon Whiteman. We’d also like to take the opportunity to thank those sufferers who bravely recounted their own personal struggles with Lyme/Lyme-like disease.

You can read our media release, the hansard or alternatively why not listen to the entire roundtable below?

Australian Lyme disease patients and tick bite location maps

LD PatientsThe exact number of people with Lyme disease in Australia is unknown as public health officials do not collect any data because the disease is not notifiable.

The Lyme Disease Association of Australia decided to remedy the situation. Part of which includes an interactive map as part of our broader program of works.

There are two maps; the first plots individuals with an officially confirmed cases of Lyme disease by residential suburb, while the second is of tick bite locations that have resulted in an individual contracting Lyme disease.

The maps provide a cumulative representation of the data obtained through our surveys from 2011 onwards. You can access both maps here.

Remember – if you review our maps and cannot see your suburb located please complete our survey to be added.

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