Australian Tick & Tick Borne Disease Resource
Brilliant job done by the Australian Association of Bush Regenerators – as always! You can find it here: http://www.lymedisease.org.au/resources/#patient
A reminder to remain vigilant!
As many of our members can attest to, the Lyme community is often targeted by groups and organisations seeking to benefit from our fragility. Should you receive unsolicited contact from an individual, group or organisation it is important to remain vigilant and to assess their credibility before engaging in any further exchange or interaction.
Unsolicited contact can come in many forms including via email, through social media, online forums or other means such as traditional post. The contact can include requests for a variety of information or for the recipient to take action, for example:
- Request for personal information such as further contact details, relevant test results or opinions on particular health topics;
- Offering a trial or seeking feedback on a new product or service, or to join a new group or forum; or
- A request for a general discussion as a ruse for gaining ones trust with a view to exploitation.
As the Lyme community’s peak advocacy association it would be remiss for us not to remind our members to remain vigilant and as such we offer the following information to assist you in determining legitimacy:
- Do you know the author, can you confirm their identity, have you heard of them before?
- What action or type of information are they requesting and for what purpose?
- Are they affiliated with any other association or organisation, if so do they utilise the official insignia? TIP: If in doubt check with the alleged affiliate.
Some other useful links you may like to visit:
- Visit Scamwatch or read the Little Black Book of Scams, published by the Australian Competition and Consumer Commission which outlines tips on how to protect yourself from scams;
- The US National Library of Medicine offers an overview on how to assess information on the internet and from other sources relating to health matters;
- Visit CIO which outlines how to spot a phishing email scam!
Finally, the Lyme Disease Association of Australia has not in the past weeks released any PDF flyers or official marketing material.
Australian Government and Lyme happenings
Much has taken place over the last few months with respect to Lyme/Lyme-like illness in Australia:
- The Commonwealth Department of Health (DoH) released its consolidated response to the 39 submissions they received for their original Scoping Study. You can view the response here.
- DoH held a Lyme disease Roundtable on 27 May 2014 with representatives from medical colleges, the Clinical Advisory Committee on Lyme Disease and General Practitioners. You can review a list of outcomes from the meeting here.
- The Clinical Advisory Committee on Lyme Disease met in Canberra on 15 July 2014 for the last time. You can review our Patient Representative’s notes for all the details here.
- DoH released an important media statement on Lyme disease in Australia following a recent segment on A Current Affair. You can view the statement here.
Further information about our work with the Federal Government can be found here.
Vote for the LDAA!
Currently, the Dick Smith Foods Foundation is running a campaign in which the charity will donate 1 million dollars to various charities with the supporters of Dick Smith Foods being the sole decision makers as to where the money will dispersed.
The LDAA are listed on the list of possible recipients and we ask if everyone could please purchase items from the Dick Smith brand, take a picture of the product and either text or email and vote for us. It really is that easy! AND, while you’re at it – please vote for the Karl McManus Foundation as well.
(It does sound strange, but believe it or not you can put an email address on the phone number field for texting and it will go through to Dick Smith Foods.)
Thank you to those who have already voted for us – your support is truly appreciated.
We still need your help!
Lyme Research ~ Would you like to help prove existence of Lyme in Australia?
Murdoch University in Western Australia were recently awarded an Australian Research Council (ARC) Linkage Grant to further their tick research program under the leadership of Associate Professor Peter Irwin (Veterinary). The grant will enable the development of ‘a new molecular toolkit to investigate zoonotic tick-borne pathogens in Australia’.
There is an opportunity for all those interested in proving that Lyme disease exists in Australia to be part of this research. Get started by reading this advice and then heading to our contact us page to request a tick donation kit.
2nd International Tick Borne Disease Conference 2014
The 2nd International Tick Borne Disease Conference hosted by the Karl McManus Foundation was another successful event – educating doctors about Lyme disease in Australia as well as international scientific advances in medicine and science for Tick Borne Disease.
You can access a copy of our informal conference notes from our Lyme patient volunteer here (zipped folder, 514KB).
Conference DVD’s will be available for purchase from the Karl McManus Foundation soon!