CAMPAIGN LAUNCH: The Federal Election 2016 and Give $10 for Lyme in May
We are very excited to launch our The May Lyme Project for 2016. This year we launch a dual campaign; The Federal Election 2016 and Give $10 for Lyme in May!
The Give $10 for Lyme in May campaign aims to raise as much money as possible to assist with the LDAA's advocacy work. We encourage you to ask your friends, family and local community to help support those with Lyme-like illness by donating $10 for Lyme throughout the month of May. Every little bit counts, but remember give only what you can!
Equally, the Senate inquiry into Lyme-like illness has raised the profile of our plight. We have been delighted to see politicians from major and minor parties, and independents come together in awareness that something must be done to help patients. The Federal Election 2016 campaign aims to build on this. We've developed a range of tools to assist you in contacting your local Federal MPs and future candidates.
You can check out all the details here. This year we've produced a step-by-step guide on how to contact your local Federal MP and candidates as well as the Give $10 for Lyme in May marketing material!
Couldn't make it to the hearings? Listen now!
We are very aware that many of our community couldn't attend the public hearings held in Perth, Brisbane and Canberra recently.
To help those who missed the hearings, or those who would like to relive some of the testimonies, you can listen live below. Each hearing, except for Canberra, is in two parts. You can also watch the Canberra hearing on video.
Thank you to everyone who attended and gave evidence, particularly the Lyme and Lyme-like patients!
Want to see who gave evidence so you can skip ahead? Access the Brisbane, Perth and Canberra programs here.
LDAA Senate Inquiry Submission has been published!
We hope this submission will go to some way in changing the way in which Lyme and Lyme-like illness patients in Australia are treated.
Thank you to everyone else that has submitted to the Senate Inquiry. Well done!
Parliamentary Friends of Lyme Launch!
The Lyme Disease Association of Australia and members of Federal Parliament launched the new Friends of Lyme group on 15 March 2016.
A number of prominent members of parliament attended and listened to the lived experience from treating physicians, patients and carers.
Head to our YouTube channel to view all of the presentations, alternatively, you can listen to our President and Dr Richard Schloeffel's presentations below.
From the USA: Lyme Disease guidelines removed from NGC
The Lyme Disease Association of Australia was recently informed that the Infectious Diseases Society of America (IDSA) Guidelines for the treatment of Lyme Disease have been removed from the National Government Clearinghouse (NGC). The NGC catalogs and makes available all current treatment guidelines for medical professionals and insurance companies in the United States of America.
As a result, the only guideline available as a recognised treatment approach for Lyme disease is the International Lyme and Associated Diseases guideline. This is a huge win for patients everywhere because it means that the IDSA guidelines are undergoing review to ensure compliance with Institute of Medicine compliance standards, something that was long overdue.